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rare disease

  • Health

    Johnson Investigates FDA Rare Disease Drug Denials | GOP Senator

    by Archynetys Health Desk March 11, 2026
    by Archynetys Health Desk March 11, 2026

    WASHINGTON — Sen. Ron Johnson (R-Wis.) said he is investigating the Food and Drug Administration’s rejections of …

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  • Health

    Lou Gehrig Hospital Founder Commended on Rare Disease Day

    by Archynetys Health Desk February 28, 2026
    by Archynetys Health Desk February 28, 2026

    Establishment of Korea’s first Lou Gehrig nursing hospital through the Seungil Hope FoundationRare disease essay and …

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  • Health

    Sanofi Gaucher Disease Drug Shows Neurological Benefit

    by Archynetys Health Desk February 2, 2026
    by Archynetys Health Desk February 2, 2026

    Andrew Joseph covers health, medicine, and the biopharma industry in Europe. You can reach Andrew on …

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  • Health

    Son’s Illness: A Mother’s Hospital Vigil & Trusting Instincts

    by Archynetys Health Desk January 17, 2026
    by Archynetys Health Desk January 17, 2026

    They are the 18.00 in the afternoon and the pleasant temperature of Bilbao allows several boys …

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  • Health

    Rabies & Transplant: Man Dies After Receiving Organ From Skunk-Scratched Donor

    by Archynetys Health Desk December 19, 2025
    by Archynetys Health Desk December 19, 2025

    A rare transplant tragedy! He contracted rabies after a kidney transplant and died. It turned out …

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  • Health

    J&J Multiple Myeloma Drug Combo Shows Promise | Cancer News

    by Archynetys Health Desk December 9, 2025
    by Archynetys Health Desk December 9, 2025

    ASH 2025 had both rain and sun, positive and negative data in Orlando, Fla.ASH 2025 was …

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  • News

    Hyperoxaluria: Symptoms, Kidney Failure & Treatment

    by Archynetys News Desk November 30, 2025
    by Archynetys News Desk November 30, 2025

    Dr. José Ramón Cansino, an expert urologist in kidney stones, warned on the occasion of World …

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  • Health

    Barth Syndrome Treatment Approved – FDA & More

    by Archynetys Health Desk September 20, 2025
    by Archynetys Health Desk September 20, 2025

    “`html FDA Approves forzinity for Barth Syndrome FDA Grants accelerated Approval to Forzinity for Barth Syndrome …

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  • Health

    Emphysema & Lung Cancer Screening: 25-Year Mortality Risk

    by Archynetys Health Desk September 10, 2025
    by Archynetys Health Desk September 10, 2025

    Claudia I. Henschke, PhD, MD Credit: Mount Sinai Baseline emphysema at low-dose chest CT (LDCT was …

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  • Health

    Secondhand Smoke & Lung Health: Impact Across Generations

    by Archynetys Health Desk September 5, 2025
    by Archynetys Health Desk September 5, 2025

    A new study has found that paternal prepubertal passive smoke exposure was associated with impaired lung …

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