The critical Need for Patient Involvement in Bladder Cancer Treatment

For individuals battling bladder cancer, active participation in treatment decisions is paramount. A recent survey highlights a significant disparity: while a vast majority (94%) of bladder cancer patients recognize the importance of being involved in choosing their treatment, onyl about half (54%) feel thay genuinely have that opportunity. This disconnect underscores a critical need for change in how healthcare providers engage with patients.

Lori Cire, president of Cancer Vessie France, emphasizes the feeling of lost control often expressed by patients. They say: I did not have the choice,it had to be done.It is tough to feel actor when only one option is offered. Though, it is indeed a legitimate desire for patients to be able to discuss, think, involve their loved ones before engaging in treatment.

Shared Decision-Making: A Path to Better Outcomes

Professor Yann Neuzillet, a urologist at Foch hospital and professor at paris-Saclay University, champions the concept of shared decision-making. He asserts that when patients are actively involved, they become partners in their care. This deeper understanding fosters better adherence to treatment plans and, ultimately, improved outcomes.

When a patient is involved, he becomes an actor in his management. It understands better the issues, more easily accepts constraints, and above all, it appropriates its treatment. This strengthens observance, and thus efficiency.

Professor Yann Neuzillet, Foch hospital and Paris-Saclay University

Neuzillet advocates for presenting all viable options to patients, including the possibility of forgoing active treatment or opting for less aggressive approaches that prioritize quality of life. This approach, he argues, is rooted in respect and trust, empowering patients to make informed choices that align with their values and preferences. Encouraging patients to ask questions and voice their expectations is crucial for tailoring care to their individual needs and circumstances.

Addressing the Overlooked Aspects of Bladder Cancer Care

Bladder cancer significantly impacts various facets of a patient’s life, extending far beyond the physical realm. The aforementioned survey reveals that a significant percentage of patients experience diminished quality of life, with 86% reporting fatigue that affects their autonomy and 83% noting an impact on their intimate lives. Despite these challenges, only a small fraction (12%) receive appropriate support in these areas.

Furthermore, over half of employed patients experience work-related modifications due to their condition, yet only 57% discuss these issues with their doctors. While 79% report psychological distress, only 36% receive psychological support. These statistics highlight critical gaps in comprehensive bladder cancer care.

Sexuality and Intimacy: Breaking the Silence

Sexuality is frequently neglected in cancer care, despite its profound impact on quality of life. Professor Neuzillet emphasizes the importance of open interaction about sexual health,and also professional activity,wich is frequently enough a vital necessity for patients. Treatments like radiation therapy and chemotherapy can have significant effects on sexual function. For example, the Canadian Cancer Society reports that treatments can cause dry orgasms and erectile dysfunction in men. In women, infertility and pain during intercourse are potential consequences.

The Importance of Continuity of Care

Another concern raised by Professor Neuzillet is the abrupt cessation of intensive follow-up care after major treatments. Patients may feel abandoned during this transition, even as they continue to grapple with side effects, doubts, and pain. This highlights the need for ongoing support and monitoring to ensure patients’ well-being throughout their cancer journey.

Supportive Care: An Indispensable Component of bladder Cancer Management

Supportive care is not merely an adjunct to primary treatment; it is an integral pillar of comprehensive bladder cancer management. Professor Neuzillet defines supportive care as all that we put in place around the main treatment so that it is indeed as effective as possible and that the patient can live it in the best conditions.

This encompasses a range of interventions, including:

• Adapted physical activity
• Nutritional guidance
• Psychological support
• Physiotherapy
• Occupational therapy

These interventions aim to prevent or mitigate side effects and enhance overall quality of life. A good diet, a little exercise before and after an operation, it changes everything. The body recovers faster, the complications are less, and morale also is reinforced. notes Professor Neuzillet.

Making Supportive Care Accessible

While the benefits of supportive care are well-established, access remains uneven. Professor Neuzillet stresses the importance of discussing supportive care options with patients from the outset of their treatment journey. When patients understand the purpose and benefits of supportive care, they are more likely to embrace it, leading to greater comfort, autonomy, and peace of mind.